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on the ice bucket challenge

queenofcorgis:

nofunphillips:

my dad died from ALS when i was 3 years old. he was 36. my mom was 33. that was 30 years ago. now i’m the same age my mom was when my dad died. and there is still no cure for ALS. 

this is what happens when you have ALS: your muscles slowly stop working, one part at a time. for my dad, first he couldn’t use one of his hands. then his arm. then the other arm. then he couldn’t walk. then he couldn’t stand up. then he couldn’t talk. then he couldn’t swallow. then he couldn’t breathe. then he was dead.

this all took about two years. he was diagnosed when i was about one year old. the only memories i have about my dad are of an inert body in a wheelchair or lying in a bed with a bunch of tubes stuck into it. as i was learning to talk, he was losing the ability to speak. as i was learning to walk, he stopped being able to move. my mom often had to choose between who she was going to help go to the bathroom at any given moment: her husband or her toddler.

after my dad died, my mom took over the philadelphia chapter of the ALS association. it consisted of a shoebox full of notecards with names on it. now it is a multi-million dollar organization with a large staff. she is still in charge. my mom is one of the most amazing people on the planet, basically.

these past couple weeks have been mind-boggling. i have openly wept watching so many of these videos. i still don’t completely get how all of this has happened, but now we live in a world in which lil wayne and taylor swift and oprah and justin timberlake and weird al and bill gates talk about ALS. my mom just emailed me this sentence: “lebron james ice bucket challenge.” i mean, IS THIS REAL LIFE?! i just keep saying over and over: holy shit. holy shit. holy shit.

so far, it has raised over 10 million dollars… and counting. my mom has spent every single day of her life for the past three decades trying to get this kind of attention and funds for this disease.

i don’t care if it’s a stupid gimmick. i don’t care if people are just doing this because it’s trendy or because they want pats on the back. i don’t care if it’s the new harlem shake. i don’t care if for the rest of my life, when i talk about ALS, i have to say “you know, the ice bucket disease.”

please, everybody, please keep pouring buckets of ice over your heads. please keep donating money. please keep talking about this.

my mom’s chapter:

http://www.alsphiladelphia.org/ 

p.s. the only reason i haven’t done my own ice bucket challenge yet is because i wanted to do it with my mom. we’re seeing each other next week, so it will happen then, i promise.

Think about this next time you think it’s just a stupid gimick

shanellbklyn:

dynastylnoire:

stair-diving-with-hayes:

Ladies and Gentleman, the man that will be in history books. He was throwing the burning tear gas. Not to the cops but away from the children protesting. In his American Shirt and bag of chips. Check his twitter.

BOOOOOOOOOOOOOOOOOOOOOOOOST

HE HAS ALSO STATED NOT TO PURCHASE THE T-SHIRTS THAT ARE BEING SOLD WITH HIS IMAGE BECAUSE HIM NOR THE TOWN OF FERGUSON WILL SEE THAT MONEY! 

Just needs to be stated again! 

Not to the cops but away from the children protesting”

masterofbirds:

in3ffable-lib3rty:

IMPORTANT FERGUSON UPDATE - WATCH THIS VIDEO BEFORE YOUTUBE TAKES IT DOWN

CNN REPORTER Fredricka Whitfield interviews the Store Owner’s Lawyer (from the store that was “”“”“”“robbed”“”“”“”“”“”” by “”“”“”“”“”mike brown”“”“”“”“”“)

As the lawyer begins to explain what really happened, cnn “”“”“loses the feed”“”“”“

WOW

I am not Mike Brown. I am white. I am middle class. I am female. I am small. I am not considered a threat. When police see me they see someone who looks like them. They see their mothers, their daughters, their sisters, themselves. I am not at risk of being shot by police for existing while black. I am not at risk of being shot while unarmed. I am not at risk of being shot while armed with nothing more than a BB gun. I am not at risk of being shot for reaching for my wallet. I am privileged.
But I am outraged. And if you aren’t outraged, then you aren’t paying attention. This is America in 2014. This is our reality. It’s so easy to get jaded and to ignore these atrocities, to act like this doesn’t affect us. It’s so easy to get apathetic. In the past it was the youth who protested. Where is the rage of the youth? Where is our rage?
Like I said, I am not Mike Brown. But I am outraged.
: I am not Mike Brown. (via asgardian-feminist)
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